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What is Transverse Myelitis?


          This is a rare condition doctors are still researching.  Dealing with Transverse Myelitis since 2007 has affect my life a great deal.  Many tests, hospital stays, medications, prosthetics and more, the condition remains with you for life.  The disappointing thing is that we STILL do not have a reason as to why this affects so many people with no possible cure in sight.  Present day, babies are now waking up unable to walk with no explanation.  It's ridiculous and we need more research done!

           A small background of my story goes as follows:  Prior to 2007, I had steroid injections every three months to help with my lower back pain.  The injections helped tremendously until one faithful day in the summer of 2007.  I woke up one morning to use the bathroom and fell out of bed.  I could not feel anything from the waist down except pins and stabbing like needles.  The pain was agonizing!  My boyfriend at the time, carried me to the car and took me to emergency.  While in the emergency room, all types of tests were done and nothing was showing up.  They admitted me for monitoring and more testing which nothing came up again.  I  was discharged a week later with home health care services so I could learn how to walk again.  It took four months for me to learn how to walk again but not fully.  I had a right foot drop and the risk of relapse of the condition.  The doctor and I both researched Transverse Myelitis and began treatment for it based on his expertise with pain management.  I had to use a wheelchair, back brace, arm braces, walker and cane (which I still have to use to this day-often).  Also, they created leg prosthetics for both legs to help me walk in the future.  Since the initial day in 2007, I have had over 10 relapses, had to quit my job, experienced severe depression and multiple medications.  I refuse pain narcotics as they just masked my pain and did not fix it.  The highest I go now is Motrin.  Not everything can be helped with pain narcotics.


             The blessing comes from above and strength comes from within, so as a result I joined platforms on social media with people who are experiencing the same condition.  This platform allows people not to feel so alone and isolated when talking about Transverse Myelitis.  I am very passionate about this condition now due to it affecting too many people and now, babies! Let's spread the word, do research and inquire about cures. Do your part today and just look up the words: Transverse Myelitis.

                                      Peace & Love
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